The Plans for Houston

Posted by Casey on October 5th, 2009

Jill, Ben and Ruby

Just wanted to post a quick update to let you all know that I finally have plans set for my visit to Houston. Dad will be joining me this time. We’ll be heading down on Sunday the 18th, with appointments starting on Monday the 19th. I’ll be starting with standard blood work and moving on to an MRI. Following that MRI, I’ll be having a different form of magnetic resonance testing known as MR Spectroscopy.

Huh?

I looked it up and read that it is “used to detect the concentration of specific metabolites in a particular region of a tumor”.

Huh?

For now I’ll take it as another way of collecting information on the tumors. I’ll let you know when I understand it in full.

Tuesday is the crazy day. I start with PET CT prep at 7:00am and will be there for three hours. From there I go straight to Dr. Slopis to discuss my seizures. Dr. Wolff will join us to discuss the situation as a whole, with results from the MRI, MRS, and PET CT obviously being the focus. We’re hoping that this delivers good news, or at the very least a better understanding of what’s going on. And finally, we’ll meet with Dr. Weinberg (my original surgeon) to discuss if I’ll need a biopsy. If that biopsy happens, it will be on Thursday and I’ll be home on Friday. If not, I’ll return home on Wednesday.

Since there are so many questions that are up in the air (is it cancer? if so, what treatments? if not, what treatments), there will be a lot of important conversations taking place to move things forward.

I’ll be sure to pass along that information once I’ve got the results. Thanks to all of you for such amazing support. My family and I are continually wowed by how many kind words of support we see.

Take care, and talk to you soon. For now, I’m off to see Jill, Ben & Ruby. I’m going to be an uncle in a few months and need to bring out my first bunch of gifts. :)

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13 Responses to “The Plans for Houston”

  1. Emily Orling

    Hey Casey! I wanted to let you know that your Gustie homegirls in Seattle have been thinking of you… Ambryn and I went to a Michael Jackson sing-along tribute a couple of weeks ago, and after shouting the words to ‘Smooth Criminal’ in a movie theatre full of MJ-loving Seattle hipsters; reminisced about good times back at Dear Old G. A. C. over a beer. It was fantastic. Ambryn was touched by the life of MJ. And it was almost as if you were there with us! Thinking of you often and at random and joyful occasions,
    Emily Orling
    “Annie are you OK… are you OK, Annie”

  2. Steven Warren

    As always, I’ll keep you in my thoughts and hope all goes very well in Houston.
    Have a great time in SF with Jill & Ben (I know you will!)
    Take good care, Kiddo ~~~

  3. Rose & Mike

    We’re praying for good news in Houston. Glad you are the family rep at the shower. Love ya!

  4. Have a great time in San Fran! Good luck in Houston–I hope everything goes well and will be thinking about you.

  5. Casey I’ll be thinking about you. My brother moved to San Jose last year so he is near your sister. What a coinkidink. Good luck in Houston. I’ll be praying for the Doctors knowledge to know what your next steps are.
    Melanie

  6. Cousin Ann

    Great Aunt June is praying for you too, Casey. Some say she has a direct line, so I’m hoping it’s connected this time too!
    Have a great time in SF too – love that you’re spoiling the kid before it arrives! That’s what uncles are for.

  7. Casey – thoughts and prayers always. You deserve some good news for a change, so I’m counting on that at your appts. Happy Birthday to your Dad on the 17th. Uncle Casey!! You’ll be the BESTEST uncle. Enjoy your visit! Love to you and the family.

  8. Sounds like a busy week. Take your dad to Good Company Seafood! As always, let me know if you need anything when your here in Houston. and sayhello to Jill for me.

  9. Lisa & Bernie & family

    Hey CAsey,
    We will be thinking of you while your in Houston & praying for the best!! Have fun in San Fran. & tell Jill & Ben hi from us, & spoil the heck out of that soon to be niece or nephew, with lots of gifts, its the only way!! Good luck & we love ya!!!
    Bernie, Lisa, Dani, Kenz, Roo & Cam!

  10. Martha Hedstrom

    I will record 9-0 and MelRo. We’ll hit the missed episodes hard when you get back! Tuesdays are better with you- far better than with Morrie.
    xoxoxoxooxox

  11. Katherina Manoharan

    Hi Casey,
    My thoughts are with you as you head out to Houston. Take care.
    Kath

  12. Hey Casey – wanted you to know I was thinking about you and hope all goes well in Houston! Miss you!
    Erin

  13. Janna Sundby

    Hey Casey, glad your Dad is there in Houston with you. Thanks for keeping us informed. I hope you hang in there for all the nasty testing. We’re thinking about you – Janna/Steve/Alana/Ian Sundby